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Social security disability (ssdi)

Started by sunnyd50 on 03/11/2010 5:56pm

hi all- i searched and couldnt find any discussions for ssdi, so thought i would start one..
would like to hear some of your stories as to how long it took , what diagnosis (es),etc got you approved & any tips you might have to get it done ...
i have been fighting ssdi for 4.5 years now, with first claim being reviewed by attorney for possible filing a civil suit in us district court. and a new claim just filed in feb 2010 with ssa still gathering medical records to make their first decision.
i asked my current neurologist a week ago if he will support my claim and his answer was "probably not".. therefore, i am relying on my rheumatologist and pcp for support, and looking for a neurologist that will support my claim. but at the same time, when it comes to having those nasty epi needles inserted into my spine, i want to know i have the best doctor doing it too, and i have been told by long term patients that this neuro is great for the epi's.
a major tip: just outright ask your doctors if they will support you on your claim, if they will not, find a new doctor that will & fast !

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GOT SOME NEWS ! yesterday (fri oct 15), got a letter from ssa .. not a denial and not approval. they have made an appointment with a local psychologist for a mental exam, as they say they need more information in re of my "nervous condition" aka anxiety... which i guess can be a good thing. however it is a 3 month wait to see this particular psych cause his local office is only open 2 days per week ! i immediately called the atty office and when i rushed home from the post office to fax a copy of this over to them, and asked if there is any way to get a quicker appt. they told me to call the dds examiner as noted on the appt paper about rescheduling at a quicker time, but it probably is not possible. i immediately said that they had told me not to talk to anyone at ssa and she said to ONLY talk about this appointment reschedule and nothing more and not to discuss anything at all other than the actual appointment date. tried to call dds and only got voicemail. after thinking about it a bit, i called atty back. asked what would happen if i made an appt with a different psych that my insurance would cover (my ins will not cover this particular psych), and have the mental exam done with report sent to atty then forwarded to ssa examiner. atty said i can do that, and if ssa gets the correct info they are looking for, they would make their decision and cancel the appt for january that they made. if they do not get the info the information they are looking for, they would require i go to the january appt. it was too late today to try to call any psych dr office for an appt, so will jump on that issue first thing monday. atty said by all my other medical records which they have and ssa has, they are trying to get it determine if the psychiatrist diagnosed me with the correct anxiety disorder (GAD) or if it is some other anxiety disorder and how much of it is related to the physical diagnoses, symptoms etc that i have.
i have talked to tons of people who are on disability and have been sent to various types of doctors for additional exams and test and they were all approved for ssdi as a result. the crazy thing about it all, i have been on medicationfor anxiety since early in 2005, BEFORE i started having problems with my back, neck etc, and on sleep disorder med (ambien) since july 2005 which wasnt long after i started having back pain. i know that ssa is not gonna send enough medical history to the one doctor that will be of any benefit to me, so whether i go to a psych my insurance covers and/or the one they want me to see, i am going to provide the dr with the most important records to review before my appt. will post again soon, once i get an appt with a psych. it is stupid to have to wait 3 months for their appt then lord knows how long after that for a decision, when this might can be decided much sooner and get a decision, be it approved or denied again then have to file for alj hearing. the sooner i get this decision, the sooner i can file for alj hearing if need be.

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Hi, I applied back in may 2010 for disability, then I received a letter from ssd to see there doctor to eval my depression, done that. Had three surgeries, now I had RSD, seeing a therapist for my depression, taking nerve pills, now getting ready to do a trial of the spinal cord stim on Nov 15. My age is 47, no college education, I've done all kind of work, retail, call center, desk jobs. But I have not been denied or approved.I have DDD, RSD, DJD, and deppression and I now have a four wheel walker with the seat my neuro dr. say I will use for life. Can any one guess what my chances are. Do I have to get a laywer. Thanks for listening>>>>My neuro dr did tell me I will not ever work again it he removed the hardware and I don't improve. Did that and I'm not doing good....but he want me to try the scstim<<<<>>>>

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gray- how long has it been since you went to the ssa dr for that appointment? if your neuro has prescribed you one of the walkers, and put in writing you will have to use it the rest of your life & social security has a copy of that, i would say your chances are VERY GOOD. i would not hire an attorney until you receive a denial on the initial application. most will not take a case until you have received that anyways. good luck to you !
i think i made the paralegal at my atty office mad last week when i called the office, but i really do not care. i asked about the dds examiner requesting updated med records from my doctors & sending them forms to fill out and return to them (ssa) since i do have the atty on the case. i didnt think they could do that, but i guess they can. she told me to tell my doctors if they receive any forms, if they fill them out DO NOT send to ssa, to send to the atty office and they will look them over, and if things are good, they will forward them to ssa. well, my psychiatrist filled out his form and sent to ssa, but i know he took care of that on the GOOD side- that is why they are sending me to one of their contracted psychologist for a mental exam in january. my neuro/pain mgmt dr did NOT fill his out and will not do it unless i am in his office and he DEMANDS payment from the patient for filling them out. i asked the paralegal why they were not keeping my file up to date with dds. she said "your file in our office is current, as they are just preparing for the HEARING".. well stupid a**-- i have a chance to get approved at recon still !!
they told me i could talk to dds ONLY to request an appointment with a different psychologist, so i did that, but have not heard anything on that yet.. well, since they will not keep my records up to date with the dds examiner myself- tomorrow i am calling dds again and ask the examiner to send me a barcode so that i can submit my records/notes from doctors MYSELF ! as they are missing some of my psychiatrist office notes that COULD possibly get a decision without waiting til the dr appt in january. i am also getting a referral from my pcp for a psychologist that accepts my insurance, as it will pay the full charges, and start going to see them asap. figure if i can get appts, i will ask to come in once a week for a few weeks, then every 2 weeks for a bit. and submit office notes to dds as soon as i get them. i have been keeping tons of notes about what causes or worsens my anxiety, panic attacks, and depression- the symptoms, increased pain etc & the side effects the meds have on me being able to function. i am physically & mentally drained from my health problems, stress of fighting with ssa and the atty.. but i AM NOT giving up-- adding more stress by looking after my own best interest..

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sunnyd50...thanks so much, here is what going on with my case with ssd. My case worker called me Monday and ask me can I call the hospital and ask did they send my records he requested. So, I call this morning and was told it was mailed to them on the 17th of October. So he say, he will note my acct that it was mailed on the 17th of October. He advise me that a decision has not been made on my case do to I'm getting ready to go through the SCstimulator trial. So I been praying very hard, I truly believe that I will get my ssd approved. After talking to other people and reading the discussion on ssd, I know I will be okay. My Neuro Dr. told me this week don't worry about anything, just try to get better. My therapy say she has submitted that I will need therapy for a while, do to I'm so depress. Now I'm seeing thing that are not there, I don't know my husband when I wake up, my RSD is on both sides of my body my right foot is so swollen and very painful and can't feel my toes. Let me make you laugh, they gave me the new walker with the seat and I can't lift it, due to I'm only able to lift five pounds. Anything more than that my back pops. I had a bone graff done on my lower tail bone and lower spine. I will keep praying for you, I write everything done, and everytime I talk to my doctors,see them, ssd case work, therapist, and when I have test done. So, keep the faith and if you are in Texas I have a great neuro dr and therapist. Keep in touch I will let you know, how I do with the stim, I'm just afraid of the jolts everyone talk about......

Sunshine......

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I have also talked to an attorney regarding applying for SSI Disability for Fibro. She told me that you have to be off of work for one year while you apply. It will take two years to go through court and if you are denied, then it will take another year or two to go back to court and fight for SSI Disability. Usually the second time in court you are awarded the disability claim. BUT, it is very hard to get approved. My problem is that I would not have any income even though I have a room mate since my home was forclosed on, so in the mean time I would have to apply for Access in the state of AZ for medical insurance while my application was being reviewed or four years!!!! It is a sad case when people with chronic pain and it is very difficult to work have to live with this pain and not be able to stay at home and take care of yourself and use your SSI after you have paid in all of these years!!

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i still have not gotten anything from ssa/dds about a sooner appt with a different shrink.. now 2 months til the one appt. i did call dds back the other day and asked about a barcode to submit records, and he can not send me one, but told me i could ask each of my dr's for a copy of their barcodes and send records in using those. i told him the neuro/pain dr will not fill his forms out unless he is paid & only when i am in for a follow-up visit. i got copies of the psychiatrist office notes from my visit last week, and also a copy of the form he filled out and sent to dds/ssa & his barcode.. he did a really good job, matching what he had marked on the forms the atty had him fill out. the next morning i faxed them over to dds examiner. now i am going to ask my neuro/pain dr for a copy of his barcode & a copy of the forms they sent him (so i can look it over before my next appt on the 15th, when he will most likely fill them out)-they may or may not give me a copy of them blank.. but that would give me a better idea if i have proper notes covering everything he may ask me...taking all my notes with me about what i can and can not do, what causes pain or makes it worse etc...you would think seeing him for almost a year now, and everything i have told him in office, he would have it all down, but he does not make notes about everything i complain about.. plus the fact that he has given me 12 different diagnoses himself (and they do not include everything that showed up in mri's of spine). so we will see !

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sunnyd50...well I guess you are doing everything you have to do to get a diff. doctor. Well, its 6 months and still no denied or approval yet. Spoke to my caseworker with ssd and he told me not to worry, he has gotten all my records. So, I'm keeping the faith that I will be approved. All my doctors are behind me, and told me I want work agin and will use a four wheel walker the rest of my life. I'm going to try the stimulator on Nov 15. So, I'm looking to see if it help. I'm in bed everyday due to the swelling on the right side due to the RSD. My pain is still very bad, and I'm still not sleeping, still taking depression med, valium, and norco, and ultram every day. But I pray that God will give all of us justice. Well I will post to let you know how the stim treat me..Good luck and keep me inform with what happen in your case....lol to everyone who is fighting to get justice with their ssd.....

Sunshine!!!!!

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Hello, new here. I have had one fusion back in 2000, and I was better for many years, not great but better and I did secretarial work. I quit that 2 yrs ago to babysit grandchildren. So now I am facing having the lumbar spine fused and screwed to my pelvis and will not be returning to babysitting. I was thinking of applying for Disabled SS. I am 54, will be 55 in April. Prob. doing surgery in Jan or Feb. Will know later this week. So anyway, am I reading right, that people who are fused, are bring turned down? Even after being fused twice? I am wondering if anyone will hire a 54 yr old woman with 85% of her spine fused. Of course the last official job I had, I did not tell them about my spine, it didn't cross my mind, but they still expected me to cart around some heavy boxes, since I was the gal who ordered supplies, as one of my duties. I know this is federal, but does anyone think it matters what state you are from? I am in IL...if anything they are crooked...LOL Well some of them anyway, and I have heard it takes a long time and many turn downs, but what makes me angry is you see young adults on SSI becuase they burned themselves out with drugs....geesh!
So who all out there got turned down with 2 fusions on their spines? I guess having a Dr on your side helps, I remember my first Dr. after having my first fusion say, R U applying for SSI? I said no, am I suppose to? He said NO, he did not believe in People applying for it with back problems, and even though I had no intentions at that time, I thought what an asshole. I struggled every morning to get ready, and get to work, and keep up all day, who is he to say no one should get it. Heaven help him if he ever gets in a car wreck or something...too many people cheating the system I guess, and when there is someone who needs it, its very hard to get it. Too sad....

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taralynn7

Sorry to hear about your back. I am just about to apply for ssdi and this what I have learned. You are over 50 and this is very important. Age does matter as does education if they deem you still can do a few things. They are less likely to retrain you if you have not done any skilled jobs or have limited education. Next.....if you meet one of the listings you should qualify. Having 2 fushions does not mean squat unless you get a Dr to go on record to state you are disabled..period. You need a doctors help and support with this or it is a very long road that may lead to nowhere. In the end if you have the records...the Dr support and data to back up a claim of disability your most likely in. With out the above that is all you have...a claim that in the end wil maybe be denied. I wish you the best of luck.

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first of all, i think a dr that makes that kind of comment should have major back trouble himself, to know what others deal with... sure, some people are able to work with back problems, all depends on the type job (office job etc), but then some can not even do that due to having to sit for hours on end... there is a lady who works in the office at my hubby's job who has had back surgery and on some heavy pain meds to this day. mind you she drives around in a CITY vehicle while taking this medication, and it is a wonder she hasnt had a wreck and hurt someone or even worse !
lots of us have done mostly physical labor & not office work including myself. it takes all i can do to sit at the pc for 15 minutes at a time just to read this board or respond to post, i am back and forth .. even to brush my hair and get dressed makes my shoulders and neck hurt these days, and driving to my doctors (most of them are about 20 minutes away) causes pain or makes pain worse.. my shoulder pain is worse than usual this week and i have not done anything to provoke it either.. no dr appts, and have only driven a mile up the street to the convenience store twice..
taralynn7-- your age will certainly help a disability claim, as 55 is in a better age bracket for approval.. there are a couple of age brackets under 49, then there is 49-54, then 55-? and maybe another one past that..so you should definitely file for ssdi asap !
like a lot of you, i have trouble sleeping too.. i take ambien just to fall asleep, but some nights it takes longer to take effect, and sometimes i still wake up during the night. sometimes i can take a half dose and be out in minutes and sleep thru the night, sometimes not. i can be watching tv during the day and fall asleep at the drop of a hat sitting up in my overstuffed highback chair... but if i lay down on the bed or sofa, i just will not fall asleep...some meds tend to make me sleepy, but if i lay down, i will not sleep- i just lay there wishing i could cause i feel soooooooo crappy! dont make sense... oh well-- best take my meds and hit the sack--

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The age group brackets are as follows.

18-44 and 44-49 Younger individual
50-54 Closely approaching advanced age
55 -59 Advanced age
60-64 Retirement Age

Over 50 is a big advantage from all research

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viking... I understand your age bracket, but my friend is a caseworker for ssd, in another state. But, I know 30 year olds who get disability. I'm getting ready to turn 48 and my doctor(neuro) told me that he put in his notes to my caseworker that I will never work due to my back and my RSD. Its been 7 months now and I still have not got a decision. I talk to my caseworker weekly and I'm getting ready to go through the stim trial on Nov 15. I was wondering if you can give any outcome on what you think is going on with my case...I've looked at the red and blue book for ssd, my depression is bad per my therepist, my RSD is stage 2, I had to cut my hair, it was so hard to comb, my pain comes from three fusions, have hardware taken out, scar tissue removed, now c5-6 in my neck is messed up. But I will not let my neuro do surgery on my neck.My pain doctor say my chances of work or slim to non due to my back is messed up, including the nerves in my back...so please give me your throughts....thank you..

Sunshine....

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gray,

Sorry for your pains. It really sucks to be in this position. The age tables are tied to the grid rules. They are a framework used to factor age education and job skills and job history. For instance someone with limited education that does a non-skilled say heavy labor job at 50 has a better chance than someone of the same age who has more education or has done several jobs with more types of jobs worked. Does that make sense...the second example has more work experience and if the job was a sit down job it does not help as thats what a light duty position entails. In the end it comes down to support of your doctor and the residual function report detailing what if any limitations one has. If a doc goes on record this person cannot do work and has the medical imaging and or facts mri ect the age is a non factor. In other words if you meet that SSDI listing and the doc concurs you do and has evidence to back it up its over....approved or will be at one point in the process. Best of luck to you.

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I would love to hear any comments on the application process. How did you apply?? Online or in person or phone? What was needed? How long did it take ect. I am about to apply. I have waited untill I crossed 50 which I have and now have nearly all my med records to hand them from the get go to hopefully speed things up.

Did any of you give them your records?

Thanks for any input.

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Well listening to all of you leads me to think I will have to go back to looking for a job after my fusion surgery. I have small computer skills, in the Real Estate field. Of course Real Estate is way down right now, so getting hired by an office slim right now. I cannot look for a new job now since I will be having surgery in January. Then no work for sure for about 3 months, per the Dr. and to look for a new job I imagine it will be another 2-3 months after that. But I wonder who would hire someone 55 yrs old, and their spine fused. But I do have a husband to support me, so I am luckier than most. So I guess I will get the surgery, get well, and force myself back to the work world, and struggle every morning, but the struggle sounds easier than applying for SSD. Sounds way too scary/

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Tara,

Get your surgery and take stock of what you have then. You said you are 55. That is very good for your claim. If you get the support of your doc and they determine you cannot sit for any length of time you most likely will be approved for ssdi. You are very favorable in the age dept..next you need the doctors suport for claim. Dont get discouraged on this. You will have a better idea of where you are at then.....quite possibly your doc may support it now. Have you aksed him? . Good Luck

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viking...hi, I was not wanting to apply for ssd, I wanted to continue to teach at the daycare I was at. I was told by my neuro doctor to apply for ssd. So, I went to the social security office and I applied with a caseworker, she ask me what my disability was, I told her that I was getting ready to go to surgery. My doctor gave me my records to take with me, my pain doctor, and my doctor out of Michigan that was taking care of me for years. So I had all of that paperwork with me to give, I went to surgery on May 19,2010, I applied on May 4, 2010. Had my surgery was hospitized for eight weeks, and when I came home I had a package from the social security office to fill out, it ask me question about if I can cook, wash myself, do someone help me get dress, what is my pain level, was I depress due to the surgery etc. I filled it out the same day I got home and my husband mailed it off. They also ask me if I was in the military or the spouse of a active duty member of the military. I told them yes, I called and someone helped me filled the paperwork out also. I'm a high school graduate, no college, been sick all my life with female problems, cancer, and heart problems. I've worked in factories, call centers, receptionist, fast food, and retail stores. I'm just puzzle that I have not got a approval or denial yet. I was told you get a response in 120 days of appling, its been 7 months for me, I talk to my case worker today and he told me he has all my records and is trying to get them together. I told him I'm getting ready to go through the stim trial, and I'm still see my therapist. He told me to call him it the stim will be implanted perm after the week of wearing it. But, all my doctors and therapist told me I will never work again due to I can't sit or stand longer that 15-20 minutes. Plus I have to use the four wheel walker with the seat the rest of my life...I was told the earlier you fill the better it is for you, if your doctors back you up. I know people who get ssd and have had only one back surgery, and under forth years of age... good luck please keep in touch with me, but I have a wonderful husband who supports me and help me get dress, shower me, and no intamacy for over one year and five months.....that ltrue love to me, he say he will always take care of me. I been working since I was thirteen years old until I was forty-seven this April when my problems started at work.....so always think positive and believe in God he want let you down, I know I will get my ssd, because I believe in God and my doctors have told me so.....smile!!!!!

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Gray,

I have a better feel for your situation and really think your case looks good. I know its frustrating waiting for an answer. Remember if you are denied its just part of the process. Most have to go through the appeal before they can be approved. In any case you are in my prayers for a positive outcome. Keep positive !!

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viking...thanks, I am positive and I would like everyone on this site to be positive. If I'm not approved I have a lawyer waiting to take my case. But, I truly believe I will get approved...Keep in touch with me...read those question in that booklet very good, they will try to trick you. Like I don't drive, and have not driven my new car since April 2010, do to my falling and no feeling in my right foot...remember if someone helps you do things, please tell them, all your medications, how you spend your day, how bad is your pain, are you depress.....good luck!!!11

Sunshine!!!!

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Hello, I just wanted to get in on conversation, I had my ssd hearing in beging of nov. and was surprised that my atrny. didnt even have to speak it lasted all of ten minutes and the judge speaking with the voc expert said that there was no question that i was disabled. It was a little agravating to wait so long to go and it took bout 10 minutes i don't know why i had to go through the court but i am happy i won. Its so sad to hear all the hell people go through. I have started to have back problems due to my dissabilities i have B/K amputation and a rebuilt right shoulder that really affects my leg being that its on opposite sides i have gone through hell with these dissabilites. My leg was barely saved for below knee amputation and have tremendous problems because it is mostly skin grafts on stump. I hope everyone makes out well and keep us up to date!

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I am glad to hear you were finally approved. It is just frustrating to hear people have to be put through this and stressed out like this. I am curious how long did the whole process take you...the timeline. You filled when and then how long to denied....then what? I imagine you went to reconsideration and then waited for a hearing?

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I applied in july of 09 then denied late nov 09 appealed on dec09 and hearing was nov 10 now i am in pa so the state matters tremendously you can look on internet for the worst states as far as backlog goes now i dont know if mine was lil dif cuz i hurt shorlder in july 08 and was on comp and thats the time they have listed because if your on comp and thinkin u gna file after make sure you file during as soon as docs say you cant work anymore make sure you file! They tried to get me out with settling but me and attrny decided that wasnt good option. Problem was my leg happend when i was 15 and i first filed when i was 25 so i missed being able to file on my dads and they called and said i dont have work credits for ssd and said you should try to work for cup years which i did and then they used that against me this time lol my work was proof enough though i was on med leaves every year and in hospitals every 2-3 months i get major infections in my leg last one i was in 8 days.

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o and no as soon as i got denied i had my attrny file appeal for a hearing my medical is permanant and can not be fixed so the thought of recon didnt make sense in my case what they were saying was i worked through my leg diss. so i can work but i really hadd no choice and when i hurt my arm it was lights out for me i have used crutches all my life and once i hurt my arm it changed my leg diss. A doctor told me when i was like 16 17 he said u have one real leg so dont ever i mean ever!! hurt ur arms and i end up hurtin my arm its like they say if ur blind ull hear very good if ur def ull see well if u loose a limb all ur body makes up for it and mainly ur arms when u cant wear the prosthetic.

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O and viking What i mean by permanant i know all urs are but imean i went to every doctor had every test and hit the end of the road last doc i seen was supposed to be best at bad amputees and said if he operates i will loose my knee so he wont and he recommends nobody else touches it . It is bad because when i was 15 i was struck by a car and temp pinned between car and garage its a very bad amputation.and i am 32 now viking.

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sunnyd50... Hope you are doing better, this is sunshine just touching base with you. I just did the scs trial which took away at least 50% of my leg pain. Once they started it up I could feel my right foot and toes. But it did nothing for my back, hip and shoulder pain after the second day. Now waiting to get the appt to get the perm one. But, I still have not been denial or approved for SSDI. I talk to my case worker and he say he has all my records, but now he need the records from the stim trail and when will have the perm one be implanted. Its eight months and I'm very happy to say that I truly believe I will be approve soon. All my doctor back me up, pain management, neuro, therpist, and even my primary care doctor...hope you get good news soon, God Bless you, Happy Thanksgiving to you and your Family...
Sunshine!!!!

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sunnyd50..got news today on my ssdi claim. Was told a decision had been made in Austin, but my case was being reviewed in Dallas. Everyone tells me thats a good sign in my favor. I just pray to God for a decision in my favor. Had a procedural on my neck yesterday, and now I'm in bed for eight days no lifting just rest. Will be getting surgery on my back for the SCS on Jan 31,2011. So, maybe thats why my case is being reviewed, maybe they think I will get better. Hope you and everyone on this site is doing good. I got greyed out for something I commented on but don't know what I could have said. Take care!!!
Sunshine

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Sunnyd50..Got some good news!!!! I wanted to let you know I got approved for SSDI on the first time. Received the good news today. So I pray that you will get yours, so that mift about everyone getting denied on the first time, cannot believe that..I'm so happy for myself, I still have surgery on my back to go. My doctor told me he would help me, and my caseworker told me not to worry....So I would like everyone who has commented to me and about SSDI, hey you can get approved if your doctors stand behind you. I will continue to stay apart of this website, and will continue to pray for everyone....Once again thanks sunnyd for stating this discussion!!!!!!Also would like to thank Pam
for all her good advise...you have to believe, applied in May 2010 and never received a deniel letter....
Sunshine

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pam6622...A very special Thank you, Thank you, because of all your good advise, and answers to my question, I'm approved with no deniel letters. I filed in May 2010 and just got a decision today in my favor....So now just waiting to see what I get paid for....Once again thank you!!!!!
sunshine!!!

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Congrats Sunshine!! I thought you would get it, but you never know, right?! I'm sure you're relieved.

Have a great weekend!

pam

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pam6622...thanks yes I'm very releived, but I still got a back surgery. I'm glad I got some income coming into my home, just don't know the amount and how many months will they pay me back pay....But I'm thankful to GOD for blessing me, my pain is real, every day...sunshine!!!!

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