SpineUniverse Community Advice
Get help and share your story with others who know what you're going through.
Please register or log in to join the discussions!

Pain Symptoms Misleading

Started by 1471627796@facebook on 09/29/2015 8:29am

This site has changed since I last visited. I have been out a while because I had some life changing revelations and health challenges.

I could do a whole blog, but it boils down to the fact that I have been struggling with Parkinson's Disease and didn't know it because it was exacerbating my back issues. The Lumbar SCS I had implanted last year helped me greatly, but became less effective because I was unknowingly prolonging/reducing the effects of PD on my legs. Eventually, the SCS became more ineffective and I couldn't walk. I went to the hospital and continued to blame the spine issues; which somehow kept the doctors focused on the wrong things also. It was easy to with my lumbar malformation, bulging discs, arthritis, and fused neck. When they couldn't contribute my spine directly to my "new" severe issues, they tested for MS and gave up.

Since my QOL became so bad with pain. stiffness, slowness, lack of emotion, lost sense of smell, inability to dress myself, etc... My wife insisted on another neuro opinion; which identified Parkinson's as soon as he saw me. He said it was obvious! I went to another Neuro to ensure this was correct and it was very obvious to him also. Later, a special brain scan (DatScan) verified my neurons are dying off.

Once I was treated for PD with meds and PT, my pain in my back became much less severe. It is now understood why I kept taking stronger meds, did a rhizotomy, etc...; but I kept spiraling downhill. It is not a great thing to have, but a great thing to be treated and have a name to my enemy. This was a result of about 5 years of trying to get answers.

My point in mentioning this, is to consider all options... and most of all DON'T GIVE UP!! MY QOL is so much better for me and my family right now. Eventually, the disease might catch up to me, technology may provide better options, or a cure may be found; but I have to live for today and you should too.

I hope the best for all of you!

- Michael

Do you find this discussion helpful?

1 Response


Wow. No response. Not sure if that is good or bad