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I have Spondylolisthesis!

Started by 503976625@facebook on 02/25/2012 1:16pm

I have Grade 5 Spondylolisthesis of the spine. When i was younger i used to always complain about pain in my back, legs and hips, i used to always comment on the fact that i could never lay on my back and front for any amount of time. My parents used to tell me off for slouching and fidgiting around when i was sat down, i was always called the naughty child. They called me a hypochondriac but when i insisted on going to the doctors they told me it was growing pains and that maybe i should try to loose some weight!
Well this made me feel sooo mad and confused, i questioned myself on weather i was just making it up. Until...... one night laying in my bed, my whole body locked up! I was paralyzed from the neck down! i could not feel a thing for about half an hour! i was screaming in my bead for my parents and i was rushed into hospital that same night. Well low and behold, i was right, there was something wrong with me!
The doctor told me that when i was a lot younger, bearing in mind i was 16 when all this happened, he told me that i slipped 5 discs at once during some king of incident and didn't realise until now. (This could have been anything, i was very active as a child, skiing, climbing, dancing and so on) The doctor said that the only reason this paralyzing sensation had occurred was because one of the discs had slipped a bit further and trapped my spinal nerve. He said i was one of the luckiest people he had met because if anyone of the 5 discs had slipped a fraction more i would have been paralyzed for life!
The doctor gave me the option of two surgery, one to fix and stable the spine as it was with a bone graph and spinal bolts and pins, or a reconstructive surgery to straighten the spine but this had a 60% chance of peralysis! From day one i always wish i had picked the second surgery as it was my life and i thought it was worth the risk but my parents refused! Still to this day (i am 23 now) i would still have chosen the second more invasive surgery but in the end as i was a minor i didn't have the vote.
I went in for surgery the day after and it was a complicated surgery, i lost a lot more blood than expected, because i was laying on my front and was not operated on at a hospital with the right facilities for spinal work, i had no support for my face and lungs. The op was supposed to last for 3 hours max and i ended up being in for 8 hours and because i was under for so long my face and chest were so bruised and swollen that i couldn't breath, so i was in intensive care for four days, in hospital for three weeks And off my feet for a year and a half.
Now seven years later i am in a lot less pain than i was, i still can't lay on my back or front, i only get minor leg pain and the odd craps, my back still dose hurt every day tho. When people complain about having back pain and say how bad it is, i just shrug my shoulders..... i deal with that pain everyday of my life and it has just become the norm to me! I don't think anyone realises how much Spondylolisthesis affects your every day living. I have no self confidence about my appearance because of the shape of my back, i can't do things like walk long distances of run because my center of gravity is completely different to everyone else's, its hard to loose weight as i can't use gym equipment, jog or walk. My life will always be different.
Recently i have been in a lot of pain and i don't now if this is just normal or what? I only saw my doctor for a couple of months after the surgery, i was offered no back brace or straightening solutions or any physiotherapy.
Dose anyone know if i should be doing something or if i am doing something wrong, or if i should be checked out? Please if you have any suggestions i would appreciate it.
And p.s i apologise for any spelling errors of miss used words, i have survive Dyslexia :)

Thank you for listening to my story :)

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Sounds as tho you should see a new surgan.
Yes after the surgery you should have had a brace.
Yes in some cases no brace is needed but you were in four 8 hours.
That tell you that you had bigger problems.
Yes spondy changes everything about your life.
My prayers are with you.
Ray.

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If you are feeling pain go to the doctor. Since you had/have grade 5 my advice is only see the best specialist out there. If you live near a major city use the best resources you can. I have grade 3/4 and I am not quit ready for surgery but I am not physically in pain all the time either. If you hurt more then normal make an appointment asap. Also google top surgeons in your city to see what is available.

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